Fight for Firewalls: HIV and Health Data Privacy in the Snowballing Surveillance State

Event Details

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With the increased abuse of technology in surveilling and criminalizing healthcare, especially abortion and gender-affirming care, more and more folks are asking: Is my personal health data safe? 

People living with HIV and human rights advocates have been demanding answers to this question for years, particularly concerning the collection, sharing, and storing of HIV genetic data without the consent of people living with HIV. Panelists will discuss the current state of health data privacy, especially as it relates to people living with HIV. Participants will learn basic concepts in health data privacy and what actions they can take to improve health data privacy at the state level.

Moderator:
Martha Cameron, International Community of Women Living with HIV (ICW), North America

Presenters:
Kendra Albert, Albert Sellars LLP
Kae Greenberg, Center for HIV Law and Policy